When you get the phone call for surgery

When you get the phone call for surgery

It’s like a little firework of thoughts goes off in your mind in about 5 seconds flat. There is a mix of actual rational thoughts, like the question of our coping ability at the moment, then there are the crazy, not so important thoughts, like being able to water the garden tomorrow.

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Why a blog?

Why a blog?

For 5 years, I’ve been struggling to cope with our 5-year-old son’s heart condition. Yet now it feels like I’m moving into a new stage. A stage filled more with hope, story sharing and helping others, rather than the all-consuming internally focussed survival mode that I was thrown into 5 years ago. My hope, really, is that by sharing this part of my story, other families facing chronic critical illness may realise they’re not alone.

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