It’s like a little firework of thoughts goes off in your mind in about 5 seconds flat. There is a mix of actual rational thoughts, like the question of our coping ability at the moment, then there are the crazy, not so important thoughts, like being able to water the garden tomorrow.Read More
There is something about a new year. I know it’s just another day, which technically doesn’t change anything from yesterday, yet there is still something undeniably different about the first day of a new year.Read More
I don’t know if it’s just me or not, but quite often in life I forget to have fun. The kind of fun that makes me feel young. That makes me laugh so hard my belly aches. The kind of fun that takes my kids and husband by surprise. I get so caught up in the day-to-day monotony of life, that I forget about fun.
But, every now and then I decide it’s time to surprise my family.Read More
The importance of community helping people survive tough situations has been reiterated in a huge way at my local level this past week. When tragedy strikes, it’s quite powerful seeing people band together - to support each other, to pray together, to cry together, to sit and chat. The importance of the time we have right now becomes so real.
Both short term and long term support is needed when crisis hits. Because crisis doesn’t last forever, but the ramifications and flow on effects often do.Read More
What is it about our Australian culture that make us feel the need to speak? What is wrong with silence? Or just a hug? Or an ‘I’m so sorry’? Why do we feel the need to make people feel better, when there is nothing that can actually make them feel better at that particular moment?Read More
It’s a busy month in our house. Lots of extra work hours, medical appointments for various family members, volunteering, plus just the usual busyness of a family of five. Nothing extraordinary, just lots on.
Usually, these busy periods mean we buy extra takeaway and don’t eat particularly well. Shopping and meal planning just seems to fall by the wayside. Then we feel worse ourselves, which doesn’t help us cope with the extra busyness. I’m sure you’re familiar with the cycle?Read More
I thought ‘that’s it, that’s exactly how I can manage unhealthy stress better’. So many things can push in on us and wear us down. Serious health issues are a big one which can just be so relentless. But there are many, many other causes of stress too. If you’re looking for ways to manage unhealthy stress, then check this out.Read More
I find myself sitting in the same surgical waiting room at The Royal Children’s Hospital where we sat waiting to take our son into his second Open Heart Surgery. Today it’s just a meeting with an anaesthetist for some dental work, but walking in did make me take a short breath and catch myself. I wasn’t expecting today to be a day of flash backs.Read More
Today is R U OK? day. It’s such a great initiative which encourages people to stay connected and have meaningful conversations. I don’t think you should ever underestimate the power of doing something small for someone who is struggling. Small things can be powerful things.Read More
We were doing the school drop off yesterday, when our HeartKid randomly came out with:
“My biggest worry is my heart surgery, Mum. I hope I die before my surgery so I can go to heaven and have a heart that doesn’t need fixing anymore.”
And his eyes welled up with tears, with a face full of sadness.Read More
This is the sort of every day stuff our HeartKid shouldn’t be able to do. He has severe leakage of his aortic valve and mild left ventricular hypertrophy. He’s had 2 open heart surgeries already and we’re waiting on the next one, which is going to be huge.Read More
One of the absolute best things that has come out of our family living with Congenital Heart Disease, is the fact that we tend to live with a mentality of 'why not?' rather than think of all the reasons why we shouldn't do something. It's like since we came so close to losing our HeartKid, my husband and I have subconsciously decided to make the most of life while we've got it.Read More
Not knowing what is around the corner with our HeartKid has taught me that I can't run at 110% all the time. It's not wise for me to run at full capacity with no space left. If I'm already running at a 10, where do I go if tomorrow our son’s heart starts playing up again and I end up in the Emergency Department?Read More